we decided to do something a little bit different for our next promotion in order to celebrate the holiday season…
between now and the end of January, we will be donating 40% of your photo session price to CTF, the Foundation dedicated to ending NF through research.
we’d love to introduce you to one of the families that we met through our business who have a child with this condition. please take a few moments to view the video below…
if you’re like me, you may not have even heard of NF (Neurofibromatosis), but it is one of the most common genetic disorders in the U.S. in fact, it is more prevalent than Cystic Fibrosis, hereditary Muscular Dystrophy, Huntington’s Disease and Tay Sachs combined. NF is a genetic disorder of the nervous system which causes tumors to form on the nerves anywhere in the body at any time. this progressive disorder affects all races, all ethnic groups and both sexes equally. you can read more here: Children’s Tumor Foundation or Neurofibromatosis Inc., California
again, 40% of any session booked between now and the end of January will be donated back to CTF!
as always, please feel free to pass this offer along to family & friends =)
happy holidays!
xoxo
jess
thank you so much Jess Robertson Photography for sharing my Cousin’s grandson’s story
(I have posted to my Facebook Account)
Sincerely,
Linda A. LaCroix
Williston VT
@Linda absolutely! my pleasure! thank you so much =)
I want to thank you for making this video of my grandson Danny. Our family and friends that don’t live near Danny always ask how he’s doing and what is NF (Neurofibromatosis). Trying to explain just what NF is and how it’s affecting Danny and others like him just didn’t seem to sink in until they saw this video. You and your husband have brought NF and Danny’s condition out in the open where people can see and understand just how NF has invaded his little body, and others just like him. Thank you so much for putting this wonderful heart touching video together for both Danny and others with NF. I’m sure this will bring the awareness of this silent genetic disorder out in the open for others to see and understand. Your generous contributions to both Danny and CTF is greatly appreciated.
Thanks you for touching all our hearts.
Susan and Dane Miller
(Grandparents)
Hi Susan! Thank you so much for your comment! It’s our pleasure to be able to do this for your wonderful family 🙂 I wish you all the best.
Thank you so much for making a video like this that we can share with friends and family and help raise awareness. We are in NZ and need more of this sort of thing here. Thanks for taking the time and helping to raise funds.
Hello I was unable to watch your video as I have Nf2 and the condition causes profound deafness I need either subtitles or a text script underneath your video people All people with NF2 go deaf at some point in there life’s.
cheers
Lynne
Hi Lynne! Thank you so much for bringing that to my attention. I spoke to my husband, and we will take some time to add subtitles…hopefully next week =) Thanks again and Happy New Year!
Just wanted to take a moment to tell you how much everything you have done for us means to our whole family and the NF community. You are not only amazing photographers but truly amazing people. Thank you so much from the bottom of our hearts. We love you so much. *Dana*
Thank you so much, Dana! Love you guys too 🙂